My Ancestry Noah's Ark My Kin: My Introduction-Discovering the Truth: My Journey from Mental Misdiagnosis to Hypermobility Ehlers Danlos Syndrome

Amina Aliomar
Apr 11, 2025
13 min read

Updated: Jun 10

Hello, I'm Amina Allah, and I want to share a significant journey that transformed my confusion and despair into clarity and understanding. As a 41-year-old woman who identifies as having Asperger's Autism, left-handed, a Libra holding the scales of justice and connected to Venus, living with a rare disease called Hypermobility EDS, MCAS, and POTS with the Y in holy cross crescent on my palms and a triple 7 birthdate, I have traversed a unique path filled with both challenges and victories. My life has been a tapestry woven from diverse threads of experience, each contributing to the person I am today. I have found strength in my diverse intellectual interests, which span a wide range of fields including science, psychology, sociology, philosophy, literature, anthropology, and medicine. Each of these disciplines has offered me different lenses through which to view my world, helping me make sense of the complexities of life. In addition to my academic pursuits, my passions extend to the realms of creativity and expression; I find immense joy in writing music, poetry and literature. These artistic outlets not only provide me with a means to express my innermost thoughts and feelings but also serve as a therapeutic escape from the challenges I face. Furthermore, I take great pride in my role as a teacher, where I strive to inspire others and share the knowledge I have accumulated over decades and from Allah.

My latest project involves explaining the reasons behind my book, "My Ancestry: Noah's Ark My Kin," a deeply personal narrative shaped by my experiences of misdiagnosis and the eventual discovery of my ancestors from Africa to Asia. This book is not just a collection of stories; it is a testament to Allah's omnipotence and Noah's resilience in the lessons, knowledge, and wisdom I have learned along the way. From childhood through early adulthood, I faced a series of misdiagnoses that led to decades of struggle and confusion. Despite distress from my pain caused by a rare disease called Hypermobility Ehlers-Danlos Syndrome (hEDS), MCAS, and POTS my symptoms were often dismissed as signs of anxiety, bipolar disorder, dissociative identity disorder, multiple personality, blacking out, and seizures which added layers of complexity to my already challenging situation.

This misunderstanding led me through a grueling 16-year journey in the educational and healthcare systems, which was meant to be enlightening but turned into an exhausting source of pain and frustration. During this difficult journey, I lost everything: my car, custody of my children, education, my house, and nearly my own life. Each loss felt like a heavy stone added to the burden I carried, yet I persevered, driven by a desire for understanding and acceptance.

The stigma surrounding mental health further complicated my situation. I was often perceived as "crazy" for speaking my truth, which only served to exacerbate my feelings of isolation and despair. It felt as though I had become a target, with many trying to silence my claims about my condition and the words I express in my music and books. The prevailing mindset around me was like a fog that obscured their understanding of my experience, an invisible, debilitating illness that turned my world upside down. I often found myself in conversations where my reality was dismissed, leaving me feeling unheard and unvalidated. This societal misunderstanding of mental health issues not only affected my personal relationships but also my interactions with healthcare providers, who should have been my allies in this journey. The struggle to be taken seriously became a battle in itself, one that wore me down over time.

In my quest for truth, I not only discovered my condition but also an intriguing ancestral connection to Ashkenazi Jews, Israelites, Edo, Chinese, Asian, Sub Sub-Saharan African, Igbo lineages and descendants from the roman empire in Europe intertwined with historical tales as ancient as Noah’s Ark. This profound discovery affected my understanding of identity, culture, and belonging in ways I had never anticipated. It was as if each piece of my ancestry was a puzzle that, when assembled, revealed a larger picture of who I am and where I come from.

The journey to uncover these truths, from Mount Sinai to encounters with medical professionals, has led me toward a kind of salvation wrapped in historical significance. Each step I took was not just a search for answers about my health but also a pilgrimage towards understanding my heritage. This exploration has enriched my life, providing me with a sense of purpose and connection that transcends my individual struggles. My narrative is not just about overcoming adversity; it is about embracing the complexities of my identity and finding strength in the stories of those who came before us.

The Misdiagnosis: A Struggle for Clarity

My quest for clarity began in my early medical encounters, a journey that was fraught with confusion and frustration. From the outset, I sought answers to my physical ailments, which manifested as debilitating joint pain and overwhelming fatigue. However, time and again, healthcare professionals seemed to dismiss my physical symptoms, frequently attributing them to emotional or psychological issues from me being molested as a toddler. This response left me feeling marginalized and invisible, as if my very real suffering was being reduced to mere figments of my imagination. Imagine enduring years of pain so severe that it rendered walking nearly impossible making you need a cane and wheel chair, only to be told repeatedly that your suffering was all in your head—a mere construct of your psyche rather than a legitimate physical ailment. During this challenging period, I faced not only physical challenges but also profound social exclusion. It was as if sharing my reality marked me as a foreigner in my own life, alienating me from friends, family, and even acquaintances who struggled to comprehend the depth of my experiences. The stigma associated with chronic illness became palpable, creating a chasm between me and those around me. A World Health Organization survey reveals a staggering statistic: over 60% of individuals with chronic illnesses encounter skepticism from family, friends, or healthcare providers.

This statistic resonates deeply with my own experiences, reinforcing the feelings of isolation and misunderstanding that I grappled with daily. Being labeled a "mental patient" became a defining aspect of my identity, overshadowing my true self and obscuring my reality. This label complicated my search for help, creating an invisible barrier between me and the care I so desperately needed. It felt as though I was trapped in a cycle of misdiagnosis and dismissal, where my pleas for help were met with skepticism rather than empathy. Each visit to a medical professional often left me feeling more frustrated than before, as I struggled to convey the complexity of my symptoms and the impact they had on my daily life. In this landscape of misunderstanding, I began to question not only my own reality but also the very systems designed to help those in need.

The disconnect between my lived experience and the perceptions of those around me highlighted a significant gap in the healthcare system—one that often prioritizes mental health narratives over physical manifestations of chronic conditions. This realization fueled my determination to advocate for myself and others like me, to seek a more holistic approach to health that acknowledges the interplay between mind, body, and soul rather than dismissing one in favor of the other. My journey is not just about seeking clarity for myself; it is also about raising awareness and fostering understanding in a world that often overlooks the complexities of chronic illness within the Israelites mentally and physically.

The Journey of Self-Diagnosis

Disillusioned by the medical system’s lack of understanding and support, I took charge of my own health in a proactive and determined manner. Driven by desperation and a deep-seated need for answers, I dedicated countless hours to researching my condition and going to college for Biotechnology Laboratory Technician to become a research and diagnostic scientist. This journey involved numerous trips to libraries, where I meticulously combed through medical texts and journals, and spent extensive time navigating online databases, searching for any information that could shed light on my symptoms. I meticulously pieced together the intricate puzzle of my symptoms, my genetics, medical records, and potential family lineage connections that might explain my health issues.

After 16 years of college, searching, learning, and advocating for myself, I finally identified my conditions as Hypermobility Ehlers-Danlos Syndrome (hEDS), Mast Cell Activation Syndrome (MCAS), and Postural Orthostatic Tachycardia Syndrome (POTs). This complex and frequently misunderstood connective tissue disorder leads to severe allergies and cardiovascular issues. This diagnosis, rather than bringing the relief I had hoped for, was met with skepticism from some medical professionals who were either unfamiliar with the condition or dismissive of its implications. The revelation of hEDS turned my understanding of my life and my body completely on its head. Hypermobility provided a name for the exhaustive list of symptoms I had endured over the decades, including frequent joint dislocations, chronic pain, breathing issues, severe weight lost, debilitating fatigue that had often left me feeling isolated and misunderstood. It was both a relief to finally have an explanation for the myriad of challenges I faced as a kid in a adult and a daunting realization that I now had to navigate a complex medical landscape that was often fraught with misinformation and lack of awareness.

However, this newfound clarity brought with it an additional challenge: I needed to explore my ancestral ties and the genetic factors that shaped my identity and health. Understanding the hereditary nature of hEDS prompted me to delve deeper into my family history, seeking to uncover patterns of health and illness that might connect me to relatives who had faced similar struggles. This exploration not only involved conversations with family members but also required me to research genealogical records, tracing back through generations to find clues that could help illuminate the origins of my condition. As I unearthed stories of resilience and hardship within my lineage, I began to understand the broader implications of my diagnosis—not just as a personal burden but as a link to a shared royal family history that shaped my identity and my approach to health.

Connection Between Israelites, Ashkenazi Jews, and Hypermobility Ehlers-Danlos Syndrome

Hypermobility Ehlers-Danlos syndrome (hEDS) is a genetic connective tissue disorder marked by joint hypermobility, skin elasticity, and tissue fragility. It is part of the broader Ehlers-Danlos syndromes group, each with varying symptoms and genetic bases. Genetic studies link hEDS to the Israelites and their descendants, the Ashkenazi Jews, where the syndrome is prevalent.

Historical Context of the Israelites

The Israelites, descendants of the biblical Jacob, have a historical narrative that connects them to various Jewish communities, including Ashkenazi Jews. Their history of migrations and diasporas has led to a diverse genetic heritage.

The Ashkenazi Jewish Population

Ashkenazi Jews, originating from Central and Eastern Europe, have a distinct cultural and religious identity. Genetic studies reveal a higher prevalence of certain genetic disorders due to factors like population bottlenecks and the founder effect.

Genetic Link to Hypermobility Ehlers-Danlos Syndrome

Research shows hEDS is notably prevalent among Ashkenazi Jews, suggesting a genetic link to the ancient Israelites. Specific mutations in collagen-related genes, crucial for connective tissue integrity, are more common in populations with shared ancestry, such as Ashkenazi Jews.

Exploring the Interwoven Heritage of Ashkenazi Jews and Ancient Israelites

The connection between Ashkenazi Jews, the ancient Israelites, and Noah the prophet intertwines history, genetics, and religious narratives, revealing a shared heritage that influences Jewish identity today.

Ashkenazi Jews: Historical Context

Ashkenazi Jews, primarily settled in Central and Eastern Europe, have a rich history beginning in the medieval Rhineland and migrating eastward. They developed a unique culture with the Yiddish language and distinct religious practices. Despite facing persecution, including the Holocaust, they maintained a strong community and identity. Genetic studies show Ashkenazi Jews share ancestry with other Jewish communities, tracing back to the ancient Israelites and Noah.

The Israelites: Ancestral Heritage

The Israelites, descendants of Jacob's twelve tribes, are central to Jewish identity. Their journey from Egypt to the Promised Land is foundational to Jewish faith, celebrated in observances like Passover. They are seen as bearers of God's covenant, shaping Jewish ethical and religious practices. This heritage connects them to Ashkenazi Jews, who maintain traditions echoing their Israelite ancestors.

Noah the Prophet: A Foundational Figure

Noah, known for building the ark during the Great Flood, symbolizes faith and divine mercy. As an ancestor of all humanity post-Flood, his lineage includes the Israelites through Shem. This genealogical link emphasizes Jewish continuity from Noah to the Israelites and Ashkenazi Jews. Noah's narrative underscores ethical living and communal responsibility.

Interconnections and Legacy

The interconnections between Ashkenazi Jews, the Israelites, and Noah reflect a deep legacy shaping the Jewish experience. Ashkenazi Jews, as descendants of the Israelites, uphold traditions, values, and teachings from Noah. This continuity is seen in religious practices and a shared identity. Noah's story emphasizes survival, resilience, and moral imperatives, reinforcing personal agency and accountability.

Facing Persecution and Overcoming Adversity

Despite receiving a diagnosis, the challenges of being labeled as "crazy" did not diminish; in fact, they grew more pronounced and complex over time. The societal stigma surrounding mental health issues, particularly for those with invisible illnesses and autistic adults, created a landscape fraught with misunderstanding and prejudice. This lack of sensitivity from society not only affected personal relationships but also led to significant legal battles and conflicts with law enforcement that were both exhausting and demoralizing. My encounters with various institutions, including the Mount Horeb Police, local schools, the University of Wisconsin, Dean Health System, Marshfield Clinic, Beloit Clinic, Cleveland Clinic, Mayo Clinic, the Madison Wisconsin Court House, Gruber Law Office, and many others, underscored the pervasive societal issues surrounding being misdiagnosed mentally and the challenges faced by individuals with invisible in chronic diseases.

The interactions I had with law enforcement were particularly troubling; they often lacked the necessary training or understanding to appropriately handle situations involving individuals with misdiagnosed mental health conditions. This resulted in misunderstandings that escalated quickly, leaving me feeling vulnerable and misunderstood. Even those closest to me—friends, family members, and numerous professionals—often found it difficult to accept the reality of my experiences. Their skepticism and doubts about the legitimacy of my struggles only compounded my feelings of isolation and frustration. This environment of disbelief and stigma fueled my determination to share my story with a wider audience. Speaking out became essential not just for my own healing, but also as a means to illuminate the struggles faced by many individuals in similar situations. It was crucial for me to articulate my experiences, to provide a voice for those who might feel silenced or overlooked.

I aimed not only to tell my story but also to amplify other voices that were often drowned out by the noise of stigma and misunderstanding. The stigma linked to my past, rather than holding me back, became a powerful driving force for change, motivating me to foster understanding and raise awareness about the realities of living with a invisible disease. I sought to create a dialogue that would challenge misconceptions and encourage empathy, not only in my community but also on a broader scale. This journey of advocacy became a pathway toward not only my own acceptance but also the acceptance of countless others who navigate similar challenges in silence.

The Transformation of Pain into Purpose

Instead of allowing bitterness to take hold and consume my spirit, I consciously chose to channel my pain into a powerful source of motivation. The experiences I have endured reflect dark struggles that resonate deeply with many individuals, yet these challenges are often left unspoken in our society. This journey through adversity has not only shaped my character but has also molded me into a passionate champion for truth and empathy, advocating for those who feel voiceless. Through the pages of my book, I strive to illuminate the harsh realities associated with misdiagnosis, shedding light on the complexities and misunderstandings that frequently accompany invisible disabilities. At the same time, I aim to honor the remarkable legacies interwoven throughout our histories, recognizing that each narrative contributes to the rich tapestry of human experience. The pain related to my condition has become a painted canvas, illustrating resilience and hope, where each brushstroke represents a battle fought and a lesson learned. It is through this artistic expression that I wish to inspire others to explore their own ancestral stories, encouraging them to dig deep into their family histories and uncover the rich narratives that may have been obscured by time.

By fostering discussions around invisible disabilities, we can create a more inclusive dialogue that acknowledges the struggles faced by many who live with these challenges. Our histories are not merely backgrounds; they are vital to our identities and survival, providing context and understanding for the lives we lead today. Through sharing our stories, we can build bridges of empathy and compassion, nurturing a community that uplifts and supports one another in the face of adversity. In doing so, we not only empower ourselves but also pave the way for future generations to embrace their own stories with pride and courage.

Wrapping it Up

I encourage you to delve deeply into the multifaceted themes woven throughout my books and songs, as they serve as a reflection of not only my personal experiences but also the collective narratives that shape our understanding of the Israelites. Each word and melody is crafted with intention, inviting you to embark on a journey that transcends mere entertainment and prompts profound reflection on the struggles and triumphs we all face. By immersing yourself in these stories, you will gain insights into the complexities of our histories, which are often laden with challenges that can foster empathy and compassion for both ourselves and others.

This is particularly vital for those who are navigating the often-overlooked realm of invisible illnesses, which can be isolating and stigmatized. Purchasing my books and music is more than a transaction; it is an act of solidarity that supports my mission to raise awareness about mental health issues, invisible disabilities and to stop poverty for mothers and children all around world. Your support aligns you with a broader movement aimed at dismantling the stigma that surrounds these topics, which have historically been shrouded in misunderstanding and silence.

Together, we can foster an environment where open dialogue is encouraged, healing is prioritized, and understanding is cultivated. This journey is not solely mine; it is a shared legacy that is waiting to be uncovered and embraced by all of us who yearn for a more compassionate world. As we embark on this collective endeavor, let us work hand in hand to dismantle the illusions and misconceptions that hold us back from genuine connection and acceptance. We have the power to create an inclusive world that not only acknowledges but also celebrates all differences, whether they are visible or invisible. By engaging with the themes in my books and prophetic music you join a community committed to promoting awareness, empathy, and ultimately, change.

Together, we can illuminate the paths of those who feel unseen and unheard, ensuring that no one has to navigate their struggles alone. Let us rise to the occasion and advocate for a future where every individual is valued and understood, paving the way for a society that embraces all facets of humanity.

In Conclusion

My path from misdiagnosis to ancestral discovery embodies courage, resilience, and the relentless pursuit of truth. It highlights the power of self-advocacy and the importance of understanding our roots. By sharing my experiences, I hope to inspire those who feel marginalized to find their voice and embrace their truth, exploring the intricate tapestry of their ancestry. Thank you for being part of my journey, may it encourage you to uncover the hidden legacies within your life. Your family history may hold the key to understanding not just who you are, but also who you could become.

My Life Songs that Resonates with Introduction:

Song: A Dark in Scary Night